因为这项研究主要基于选择的部分并不能代表所有的闭锁症患者,而且调查时,患者身旁均有护理人员或家人在场,这也影响到患者对问题解答。
Patients also answered the survey with a caregiver or family member present, which may have influenced answers.
遭受闭锁综合症的折磨——精神状态机敏如常,但身体却瘫痪了——是可想象的最坏命运之一。
To SUFFER from locked-in syndrome-to be mentally alert but physically paralysed-is one of the worst fates imaginable.
“一些闭锁综合症患者自我评定的幸福或许是他们对这种身体极度失常状态的认可和接受”。
"That some locked-in syndrome patients self-report happiness may suggest they have succeeded in adapting to their condition of extreme disability," said Laureys and his colleagues.
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