患有先天中枢性换气不足症候群的孩子们能够成为社会的一员，他们需要的只是大家小小的支持。
Children with CCHS can achieve and be part of society - they just need a bit of support.
患有先天中枢性换气不足症候群的患者需要在晚上进行换气，重症者则需要全天24小时进行换气。
He says people with CCHS need ventilation at night, with the severely affected needing 24-hour ventilation.
单亲妈妈Sarah现在和小sam居住在加的夫的Pontprennau，她说“我很庆幸小sam能被诊断出患有先天中枢性换气不足症候群，但这听起来是那么得可怕。”
"I was grateful to know he had been diagnosed but it sounded scary," says Sarah, a single mum who lives with Sam in Pontprennau, Cardiff.
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