如果不治疗，约10%的受感染者五年后可能出现损毁外形和致残的并发症，因为该疾病会严重毁坏皮肤和骨头。
Without treatment, about 10% of affected individuals would develop disfiguring and disabling complications after five years because the disease may cause gross destruction of the skin and bones.
五岁的小女孩朱莉安娜生下来就患有不治之症，她选择在家中迎接天堂，而不是带着呼吸面罩在医院里接受无止境的治疗。
Julianna Snow, a 5-year-old girl with a deadly illness, is opting for heaven over being on a respirator in a hospital enduring endless treatments.
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