Objective: to evaluate the disease burden of Downs Syndrome (DS) both to the patient and to the family by qualitative study, and to provide references for policy making.
前言:目的:通过定性研究方法,客观、全面地评价唐氏综合征患者和家庭的疾病负担,为相关政策制定提供依据。
Objective: to evaluate the disease burden of Downs Syndrome (DS) both to the patient and to the family by qualitative study, and to provide references for policy making.
前言:目的:通过定性研究方法,客观、全面地评价唐氏综合征患者和家庭的疾病负担,为相关政策制定提供依据。
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