In 2012, there were just 10 transplants in Sarah's age group, according to the United Network for Organ Sharing.
The United Network for Organ Sharing, the congressionally created agency that administers the organ-donor process, divides the country into districts.
Louis Children's Hospital is a board member at the United Network for Organ Sharing and helped write the current pediatric transplant system.
As of this week, 84, 000 people are waiting for a kidney donation, according to the United Network for Organ Sharing, which keeps an updated list.
CNN: Massive transplant effort pairs 13 kidneys to 13 patients
Patients who need the organs of a deceased individual must also wait on the list, as United Network for Organ Sharing determines where to allocate these organs.
Typically, patients seeking organ transplants register as candidates for the national waiting list through the United Network for Organ Sharing after receiving medical clearance from their hospitals.
Now the United Network for Organ Sharing is considering changing the rules for kidneys to be more like hearts, matching younger donors with younger recipients and also giving priority to the healthier patients.
As the "host organ procurement organization, " LifeQuest was responsible for the quality of the organs it offered when it posted their availability on a national database maintained by the United Network for Organ Sharing.
Most nations have instead adopted highly regulated donation systems like the United Network of Organ Sharing in the U.S. UNOS monitors each kidney, lung, heart or liver available from a deceased donor going to a patient on a wait list.
United Network for Organ Sharing, a nonprofit that manages the nation's transplant system under federal contract, agreed to the review Friday, the same day that an urgent request was made by U.S. Health and Human Services Secretary Kathleen Sebelius, UNOS spokeswoman Anne Paschke said.
The Organ Procurement and Transplantation Network, a public-private partnership that sets nationalpolicies for organ allocation and screening, and the United Network for Organ Sharing, which operates the system, are formulating a policy for living-donor screening that would keep patients safe without compromising organ availability, said Connie L. Davis, who chairs the panel working on the policy.
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