• As well as the new fund, a separate review is currently examining if the IPTR arrangements can be improved.

    BBC: Kalydeco tablets

  • Holyrood's health committee heard last year that the IPTR system was an "inequitable process" that favours young, middle-class and articulate applicants over more suitable vulnerable people who cannot speak up for themselves.

    BBC: Kalydeco tablets

  • MSPs heard last year that the Individual Patient Treatment Requests (IPTR) system, which patients can use to get drugs not yet approved for general use by the SMC, is an "inequitable process" that favours young, middle-class and articulate applicants over more suitable vulnerable people who cannot speak up for themselves.

    BBC: Scottish 'orphan drugs' fund launched

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