Six month old Seth Petreikis was born with an extremely rare genetic disease called DiGeorge Syndrome.

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Louise Markert of Duke University has developed a radical procedure for DiGeorge Syndrome.

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DiGeorge Syndrome has also left Seth with some serious heart defects.

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Her 18-year-old son Jermarl Henderson, who has a chromosomal disorder called DiGeorge Syndrome, has had multiple open-heart surgeries and requires intensive, complex therapy, she said.

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Because DiGeorge syndrome can result in so many disorders, a number of specialists will likely be involved in diagnosing specific conditions, recommending treatments and providing care.

CNN: DiGeorge syndrome