As part of the campaign, Ms Nickless started an e-petition which has attracted more than 11, 000 signatures.

BBC: Ellie Nickless

Jess Nickless, from Dawlish, whose daughter Ellie has the condition, has asked the government to make Kalydeco available to those who would benefit.

BBC: Ellie Nickless

"I am delighted that the PGA EuroPro Tour is heading to Northern Ireland and Galgorm Castle Golf Club, " said Danny Nickless, Operations Manager, PGA EuroPro Tour.

BBC: Galgorm Castle reveal details of EuroPro PGA event