McCarty, an investigator at Nationwide's Center for Gene Therapy, says relying on another researcher's data from a natural-history study would be problematic.
And even if a natural-history study leads to a clinical trial for a treatment, there is no guarantee the same children will be allowed to participate.
When he heard about the natural-history study being planned by Nationwide, Mr. Zeighami says he wondered why they had to redo data that Shire might already have.
If a therapy eventually is developed, and a clinical trial begins, a natural-history study can be used to help evaluate whether it is working to slow or stop the disease.
Roy Zeighami, of McKinney, Texas, signed up his 5-year-old son, Reed, who has Sanfilippo syndrome, for Shire's natural-history study in 2011, and plans to enroll him in the Nationwide Children's study, too.
"It is much more useful and informative to do one comprehensive natural-history study rather than numerous smaller efforts, and we encourage people to either pool their efforts or, even better, collaborate on one larger project, " says Sandy Walsh, an FDA spokeswoman.
E-filing started as a pilot project in 1986 ( you can read the history and study results here as a pdf) when 25, 000 were filed online.
The groundwork for the "Japan-Korea History Joint Study Project" was laid last September, when scholars from both sides met at a Tokyo symposium and studied each other's textbooks.
Politics is history in the present tense, and the study of history can inspire us to aim high in our own lives.
Maybe it is human nature, not the failure to study history, which causes history to repeat itself.
If you study history, as I do, you will see that all expansions include big variations in rates of GDP growth over their course.
Overall credit card satisfaction is up for all issuers, and is at its highest level in the six-year history of the study.
He went on to study history at the University of Leiden, where his taste for partying earned him the nickname "Prins Pils" .
Magosaki quotes a historian to the effect that we study history not so much to understand the past, but to understand the present.
Mr Tarr said teaching should be rigorous and challenging, but it was "academic snobbery" to say you could only study history by taking lots of detailed notes.
Only five of them faced the Irish last year and the fact that England have lost six of their last seven matches against Ireland is irrelevant - players don't study history, trust me.
The risk score was a greater predictor of becoming a smoker than family history according to the study.
FORBES: Genetic Factors Linked to Smoking Addiction in Teens
In addition to their guard duties, the young men will receive agricultural training and study Jewish history, Talmud, philosophy and Arab history.
At present, pupils are most likely to study US history only in terms of Roosevelt and the New Deal and Martin Luther King.
He said it would also democratise the study of history because anyone would now be able to walk through the archive and re-interpret events.
During that year they study Jewish history, Zionist history and Talmud.
As this weekend's international break approaches, not to mention the many more that will follow, the tattooed youngster may be well advised to study his history.
Wenlan Chia came to New York 12 years ago to study art history at NYU, but found herself taking classes at FIT the Fashion Institute of Technology.
"Identifying the voice of Alexander Graham Bell, the man who brought us everyone else's voice, is a major moment in the study of history, " said museum director John Gray.
If you write or study the history of American foreign policy in the nineteenth century or the the twentieth century, there is surely a role for the U.S. relationship with India.
WHITEHOUSE: The U.S.-India Economic Relationship in the 21st Century
When you study the history of education reform, you will find that one thing that has never been lacking is earnest, well-meaning white people talking loudly about how something must be done.
FORBES: The Value of Hopeful Skepticism in the Education Reform Debate
Why is it that after all our ability to study world history and human behavior in the many schools of higher learning that we have that we are so ignorant of the most obvious?
"This is the first step in the creation of a virtual time machine, which our children and grandchildren will use to study the history of Rome and many other great cities around the world, " he said.
Bowler, a Thailand-based Australian, has run half a dozen of the tours in recent years, during which participants are taught the basics of Islamic practice, study Islamic history and calligraphy, pray in mosques and live and eat with Muslim families.
Such narrative pap was poisoning future students' minds, they moaned, making later study of real history more difficult.
ECONOMIST: Dumbed-down Britain? You would be stupid to believe it
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